Thursday, August 18, 2011

Prayer Requests:

For those of you who said you'd pray for the couple from our church's baby, Lilah, who was born on Monday, here's an update.
(If you missed it, you can read about this precious baby here.)

Lilah was born with spina bifida - and from what I understand either has 3 or 4 missing or exposed vertebrae.  She has already undergone one surgery very shortly after her birth and has recovered fairly well, although has had some issues with her breathing (the breathing tube was removed but then had to be replaced after she underwent some distress).  She will be facing a second surgical procedure on Friday to put a shunt in her brain to help reduce the fluid on her brain.  This will likely be something she may have for the rest of her life from what I understand.  We are thankful she doesn't have severe hydrocephalus ("water on the brain"). 

At this point, her prognosis is so unpredictable.  I've heard she had some movement in one leg - but also that she apparently had no feeling in her feet when she was prodded with a pin at birth?!  So much could change and happen yet - but one thing we know FOR SURE is that our Great Physician God is in complete control of her present and her future. 

And while you are saying a prayer for Lilah, would you also pray for Ethan, a twin who is facing a bone marrow transplant (?) ... I babysat Ethan's mom (!!) and her brother when I was 16 and 17 years old!  Ethan's mom Sara is the daughter of one of my high school teachers. 

I don't take my healthy children for granted ... and I know God does not favor me any more than He does these 2 families ... He just has different plans for each of us, different trials and growth He wants us to experience.  As mothers (parents) and Christians, we can share the burdens of others and have the privilege of bringing others to our Father's Throne of Grace. 

Let us therefore come boldly unto the throne of grace, that we may obtain mercy, and find grace to help in time of need.  (Hebrews 4:16)




4 comments:

Michelle - Blessed Mom of 4 said...

Seeing kids suffer always hurts my heart so much I can only imagine how their parents and Creator feel to see it. But it is so comforting to remember that God loves them even more than we do and is always caring for them. I will be praying!

Mrs. Doug said...

We are in prayer for these little ones. Also praying for the church and those who have contact with the families for wisdom in how to help.

Thank you for sharing.

melanie said...

Oh, I missed the previous post about Lilah. I will be praying for Lilah and her family ♥

Rochelle said...

I missed this post as well, I will certainly add her and her parents to my prayer list.